Survey Finds Patients With Advanced Ovarian Cancer Experience Self-Control And Frustration With The Screening Process
PHILADELPHIA CREAM, August 5, 2021 / PRNewswire / – New Health Union Survey Finds That While Many People Living With Advanced Ovarian Cancer Currently See Their Condition Under Control And Have A Positive View Of Many Aspects Of The Patient’s Journey, They Maintain Frustration considerable in the face of ineffective testing and screening. to treat. The inauguration Advanced ovarian cancer in America survey sheds light on the perspectives and experiences of those affected by stage 3 and stage 4 ovarian cancer.
These findings also support and fuel content and engagement for the recent launch of AdvancedOvarianCancer.net, Health Union’s 33rd condition-specific online health community.
Compared to people with early stages of ovarian cancer – when cancer cells grow in, on, or near one or both ovaries – people with advanced ovarian cancer have metastasized, or spread of cancer to other parts of the body, often quickly.
However, despite the metastatic nature of advanced ovarian cancer and the various symptoms and impacts on quality of life experienced, Advanced ovarian cancer in America survey respondents are mostly positive about various aspects of living with the disease, including the impact of treatment and relationships with their healthcare professionals. Specifically, 63% of respondents said they felt their ovarian cancer was under control with their current treatment plan.
The impact of treatment is seen by looking at the initial and current stages of diagnosis. While 96% of respondents were initially diagnosed with advanced ovarian cancer, the number of respondents currently diagnosed at advanced stage is 55%. Specifically, 20% of respondents were initially diagnosed at stage 4 and 76% were initially diagnosed at stage 3. Currently, 26% are diagnosed at stage 4 and 29% are diagnosed at stage 3, while 35% are in remission and 10% do not know their current stage.
Respondents also tend to have a positive opinion of their relationships with health professionals. Healthcare professionals – primarily gynecological oncologists, as well as medical oncologists and other professionals – receive extremely high marks across the board. At least 80% of those surveyed who are currently seeing a healthcare professional said they thought these people provided excellent care, cared about them as people, were thorough, listened to them and were easy to talk to . Respondents appear overwhelmingly positive about treatment-related communications, with 86% saying their healthcare professional clearly explains treatment options. Likewise, more than eight in ten respondents said they had received adequate information to make decisions about treatment or surgery.
“A good ovarian cancer care provider should be ready to listen and have frank, honest conversations with their patient,” said patient advocate AdvancedOvarianCancer.net ShaRhonda Sage. “I really think the treatment team can make or break the patient. For me, having several doctors ready to take the time to listen to my concerns has helped me put myself at ease. It encouraged me and helped me trust their treatment plan. “
Despite these mostly positive experiences, respondents identify a consistently frustrating aspect of the advanced journey of ovarian cancer patients: the process of screening and detection. Currently, there is no specific or effective screening test for the early detection of ovarian cancer, a point on which 82% of respondents expressed frustration.
Due to the nature of the disease, this leads many people to not be diagnosed until they are at an advanced stage and have related symptoms. In fact, only 1% of respondents said their ovarian cancer was detected through a screening test before symptoms appeared. Meanwhile, three-quarters of respondents had their cancer detected after seeing a healthcare professional due to symptoms, and 15% had their condition discovered accidentally through unrelated medical activity, such as an exam. routine medical or unrelated surgery.
“These results are extremely valuable in understanding the frustrations that people living with advanced ovarian cancer experience throughout their health journey,” said Lauren Lawhon, President and Chief Operating Officer of the Health Union. “Understanding these frustrations can help the healthcare industry deliver solutions that truly address what patients are going through. At the same time, AdvancedOvarianCancer.net is an important resource for people looking for information, connections and support when working on various aspects of the patient. travel.”
The inauguration Advanced ovarian cancer in America survey, conducted from Dec 1 2020, To March 19, 2021, includes responses from 153 people diagnosed – either previously or currently – with advanced stage ovarian cancer. Additional survey results may be available on request, and other patient perspectives are explored at AdvancedOvarianCancer.net.
About the Health Union
Health Union, with the recent acquisition of WEGO Health, maintains the largest team of experts, patient advocates and health leaders dedicated to social health. The company fosters social interactions that turn into valuable online health conversations, helping people with chronic illnesses find the information, connection, and validation they seek. Health Union does this by creating condition-specific online communities – posting original, daily content and continuously cultivating social conversation – to support, educate and connect millions of people with chronic and challenging health issues. Health Union’s family of brands includes 34 online health communities, including LungCancer.net, ParkinsonsDisease.net, MultipleSclerosis.net, and Migraine.com.
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SOURCE Health Union